Dr. Urano's Blog

Wolfram syndrome wrist band

Thank you Wolfram UK

My visit to the UK was successful and meaningful. Wolfram teams in the UK and US are now connected. Dr. Barrett (Birmingham Children’s Hospital) and Dr. Morrison (Queen Elizabeth Hospital) at the University of Birmingham have created pediatric and adult clinics for Wolfram syndrome and are planning a clinical trial. I learned a lot from them. I met with many patients in the UK and learned their challenges and needs. Mrs. Tracy Lynch, President of Wolfram UK, and Mrs. Stephanie Snow Gebel, President of Snow Foundation, are now connected. All the people involved in the Wolfram UK were so kind and compassionate. I feel that this is the beginning of our next step.

Thank you again for inviting me to the UK. I feel grateful and hopeful today. We have a lot to do together. Thank you, Thank you, Thank you.

Warmly,

Fumi Urano