Dr. Urano's Blog

Steps to a Cure

Thank you, Thank you, Thank you. Our progress.

As we approach the end of this year, I would like to thank you again for your continued support, encouragement, and patience. The number of emails and phone calls I receive has been increasing.

Three things are always on my mind.
1. Raise Awareness of Wolfram Syndrome
2. Improve the Clinical Care
3. Provide Novel Treatments and A Cure
We have made significant progress in all three areas, especially #1 and #2. However, the most important thing, #3, has not been accomplished. I will keep on doing my best to make progress #3.

My team has discovered one FDA-approved drug and two new drugs (in collaboration with NIH) that can potentially delay the progression of Wolfram syndrome. The Snow Foundation is conducting a campaign to raise funds to bring these drugs to our patients. I keep on developing novel therapies based on novel biologics and stem cells. We are racing against time, and I will keep on doing my best. I will not give up.

Thank you so much for your support. I am thinking of you. Thank you, Thank you, Thank you.

Take care,
Fumi urano