I am working with the Snow Foundation to create a social network just for the Wolfram syndrome community. The new website will provide a place for the Wolfram syndrome community to share questions, tips, ideas, experiences, encouragement, and HOPE. If you have any ideas or questions, please send me email to “firstname.lastname@example.org”. We would like to help our patients.
Thank you for your continued support. I read every email from you and try to respond to you as soon as I can. I appreciate that you share your experiences and questions with me. It is my privilege to see patients with Wolfram syndrome.