Dr. Urano's Blog

Raise Awareness of Wolfram syndrome

It has been already 12 years since I started working on Wolfram syndrome. When I started working on this disorder, even physicians and diabetes investigators did not know about this disease. This has dramatically changed in the past few years, and I get more than 100 emails every week from Wolfram syndrome patients, their families, type 1 diabetes patients, and physicians. I have to thank patient organizations, including the Jack and JT Snow Scientific Research Foundation, the Ellie White Foundation, and the Team Alejandro, for their efforts on raising awareness.

I will keep on working hard to develop a novel treatment and a cure for Wolfram, and raise awareness of the disease.