Dr. Urano's Blog

International Wolfram Syndrome Consortium

Raise Awareness October 29, 2014

It is important for us to raise awareness of Wolfram syndrome and other rare diseases. I often talk about this topic because this is so important. We need more doctors who know about Wolfram syndrome in each state or city. We need to develop new treatments for the disease and bring them to patients as soon as we can. We are racing against time and every moment counts. We need to develop stem cell-based therapy for the disease and bring this to the clinic swiftly.  All of these are required to accomplish a cure and can be accelerated by raising awareness. We will keep on working with you. Please help us spread the word.
http://wolframsyndrome.dom.wustl.edu/

Thank you for reading this blog. I hope you have a wonderful day. Kindly, Fumi Urano