I spoke with and met with a few family members whose sons/daughters were diagnosed with Wolfram syndrome this week. I would like to emphasize something really important here today. Please feel free to contact me. Please don’t seek answers online. The information you find online may not be accurate or exaggerated. Each patient is different. I would gladly speak with you anytime. Please feel free to contact me if you are diagnosed with Wolfram syndrome or if you feel you have Wolfram syndrome. http://wolframsyndrome.dom.wustl.edu/
Wolfram syndrome is a serious disease, but what you find online may not be true. A rare disease is rarely the answer that is found online.