Dr. Urano's Blog

Patient support groups

Patient support groups have been helping us a lot. The Worldwide Society of Wolfram syndrome was established by Mr. Robert Birkinshaw. It was taken over by Mr. Kip Branch and Mrs. Pat Gibilisco is currently running the program. The Jack and JT Snow Foundation and The Ellie White Foundation have been helping our team’s research toward a cure for Wolfram syndrome. I always appreciate their sincere efforts.
http://www.didmoad.org/

I hope you will share the following video created by the Jack and JT Snow Foundation. I hope you will help us spread the word.

http://vimeo.com/82103685

Thank you again. I feel grateful. I will talk about a new therapy for providing a cure for blindness later today. http://the-japan-news.com/news/article/0001564776

I hope you will have a wonderful weekend. Take care, Fumi