Dr. Urano's Blog

Facebook Italy Wolfram Syndrome

Patient Organization in Italy

We are developing the social network for the Wolfram syndrome community with the Snow Foundation. I always think about three things:

1. Improve clinical care
2. Raise awareness
3. Provide a cure

The social network will help us achieve all of these. Recently, a new patient organization has been created for patients in Italy. Federica is leading this initiative. Because our social network will be international, it is important for us to connect with multiple patient organizations around the world.

Thank you for your continued support and encouragement. I read every email with gratitude.

Kindest regards,

Fumi Urano