Dr. Urano's Blog

Living with Wolfram Syndrome

Living with Wolfram Syndrome

I was reading a blog written by Lauren Gibilisco yesterday and felt empowered. Lauren is my hero. The reason is she gives me strength and keeps me going. She is living with Wolfram syndrome. I am not. I think about Wolfram syndrome 24/7, but I am not living with it. Because I am not living with it, sometimes I want to escape from it, especially when I feel that I am not getting support from other people or I encounter challenges. Lauren cannot escape from Wolfram, she has to live with it. Wolfram syndrome is always with her. Lauren’s blog is the driving force for me. Thank you, Lauren. I look forward to seeing you soon.

http://thesnowfoundation.org/living-with-wolfram-syndrome-lauren-gibilisco/

Thank you for your continued support and encouragement. I cannot thank you enough.

Take care,

Fumi Urano