I have been working with physicians, researchers, industries, and patient organizations to achieve three goals.
1. Improve Clinical Care
2. Raise Awareness.
3. Provide a Cure
We want to make a difference in the future of our patients. Everything we do should be directly beneficial for our patients. I speak and meet with members of the Snow Foundation almost every day to achieve these goals. One of the blogs written by Stephanie Snow Gebel, Chairman of the Snow Foundation and a mother of a daughter with Wolfram syndrome, clearly articulates what patients and their families want. I hope you spend one minute for reading this blog.
Thank you for reading this blog. I always appreciate your feedback and encouragement. I can keep on working because of you.