I was watching this video yesterday. This is a story about Jennifer, a British girl with Wolfram syndrome, and is extremely moving. I hope you WATCH this. You will be struck by the huge amount of medical supplies at her house. You will understand her and her family’s CHALLENGES. I met her family in England a few weeks ago. Her parents, Tracy and Paul Lynch, created the Wolfram syndrome UK to raise awareness and funds for Wolfram syndrome research. I was moved by them. I was moved by Stephanie and Barclay who started the Snow Foundation and came to Washington University. There is an urgent need to develop treatment for Wolfram syndrome. Please help us.
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