Dr. Urano's Blog

Lauren Living with Wolfram Syndrome

Heartwarming stories from our patient

I was reading a blog written by Lauren, one of our Wolfram syndrome patients, yesterday. After I read it, I felt calm and serene. I was exchanging email with Anne Harkin, Vice President of Operations of the Snow Foundation. Anne is a compassionate and wonderful person who has been raising awareness of Wolfram syndrome with us. Both of us agreed that Lauren has a great way of sharing her stories and everyday struggles Рall with a sense of humor. I recommend that you read the following blog.

http://thesnowfoundation.org/living-wolfram-syndrome-lauren-gibilisco-17/

Thank you for reading today’s blog. I hope you have a wonderful Sunday. I am thinking of you.

Kindly,

Fumi Urano